Exploring Well-being with People who need Care and Support in Wales
We are inviting you to take part in an interview for the above study. Before you decide if you would like to take part, it is important for you to understand the purpose of the study and what the interview will involve. Please take the time to read this information carefully and please do not hesitate to ask us if there is anything that is not clear. Thank you for reading this.
What is the purpose of the study?
In 2016 new legislation (laws) came into force in Wales to change the way that social care works and what care and support focuses on. An important part of this was a new focus on the ‘well-being’ of people using social care services. All social care services are now supposed to be focused on improving the well-being of people who access them, while still keeping them safe and physically well. In this study we would like to know what you think about your care and support being focused on well-being. We would also like to know whether the ways well-being is being measured make sense to you. We would like to know about your general experiences of social care since the new legislation took force in 2016.
Why am I being asked to take part?
We wish to speak with people who need care and support and receive social care services under the new legislation. The purpose of these interviews is to understand what people in this group think about well-being and how it is measured. What we learn will help us to evaluate how well the new legislation is working for people in Wales.
Do I have to take part in an interview?
No. It is up to you to decide whether or not you take part. If you decide to take part we will discuss the contents of this information sheet with you further and describe the consent process; you will be asked to sign a consent form prior to the interview.
What happens if I agree to take part?
You will be offered to speak to us, face-to-face or via telephone/Skype, at a date and time that suits you. At the time of the interview, we will go through this information sheet and ask you to fill in a consent form. We will then talk about your views and experiences of well-being and social care. Everything you say during the interview will be treated confidentially. If you agree, your interview will be audio-recorded and later transcribed. This allows the researcher to concentrate fully on your conversation during the interview. You will be free to stop and withdraw from the interview at any point during our talk.
How long will the interview take?
The times vary for each person we talk to, but we expect most interviews to take about one hour.
Will my taking part in the project be kept confidential?
Yes. Your data will be processed in accordance with the General Data Protection Regulation 2018 (GDPR). Any information collected about you will be kept strictly confidential. Your data will only be viewed by the project team.
How will my information be stored?
Original audio files will be transferred to University approved computers immediately after the interview and deleted from the recording device. Audio files stored on computers will be destroyed after transcription; anonymised electronic copies of transcripts will be stored on approved University computers, which are password protected and virus checked; Data will be preserved and accessible for a minimum of 20 years after completion of the research. No personally identifiable information will be kept.
What will happen to the information provided for the project?
Findings of the project will be presented in a report for Welsh Government and may be published in academic and professional journals.
Who is carrying out the research?
The information is being collected by Pippa Anderson and Simon Read from Swansea University, and Jen Lyttleton-Smith from Cardiff University.
Are there any risks associated with taking part?
Research and evaluation undertaken via the college of Human and Health Sciences (CHHS) at Swansea University are looked at by the Research Ethics Committee (REC). The CHHS REC consist of an independent group of people with experience and expertise in research who oversee projects to ensure your safety, rights, wellbeing and dignity are protected. This project has been approved by the CHHS REC and there are no significant risks associated with participation.
Can I speak Welsh if I take part?
Yes! One of our research team is bilingual and will be happy to conduct an interview with you in Welsh
Further information and contact details
If you have any questions about the project or would like to speak to someone about taking part please contact:
Phone: 07875 133 926